MEDIA, REPORTS & CORRESPONDENCE
About this Report.
The ABTC hosted a roundtable that was convened on Tuesday, 29 October 2024. The event was facilitated by Evohealth and involved key stakeholders from clinical research, patient advocacy and allied health backgrounds.
The aim of the roundtable was to discuss gaps in cancer care navigation faced by brain cancer patients, their families and carers in Australia.
This report is informed by the insights shared by stakeholders at the roundtable, and enhanced with the results of a survey of brain cancer care coordinators across Australia, and selected submissions received from people with brain cancer, and their loved ones.
We would like to acknowledge the individuals
who contributed to this project, particularly the attendees of the roundtable and the tireless work they do for the brain cancer community.
Brief to Hon Bill Shorten MP.
22 September 2023
Ministerial engagement to re-instate brain tumour patients access to NDIS
CORRESPONDENCE & MEDIA STATEMENTS
Letter to Minister Butler MP
Request to Minister Butler in introduce the Australian Brain Cancer Landscape 2025 work that seeks reset governments understanding and commitment to fund and support Research, Clinical Care and Research supports in Australia.
21 July 2025
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Media Statement - 16/9/2024
Therapeutic Goods Administrations (TGA) publishing of Australian Register of
Therapeutic Goods (ARTG) ID 428499 – VORANIGO (Vorasidenib)
16 September 2024
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ABTC PBAC Submission - Vorasidenib
28 May 2025
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BCCC - Government Funding Proposal
Request to government to fund the implementation of 23 dedicated national brain cancer care coordinators and the subsequent framework.
28 JANUARY 2025
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